Saturday, May 17, 2014

World NF Awareness Day!

Number 10: NF affects one in every 3,000 children born, more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined (learn more).
Number 9: It only takes 8 to 10 letters from you and your friends to your congressperson for them to start noticing that NF is a very REAL issue (learn more).
Number 8: NF research is shedding new light on cancer, learning disabilities, and bone abnormalities - benefiting people beyond the NF community (learn more).
Number 7: CTF was recently awarded our second straight 4-star (highest) rating by Charity Navigator – America's largest independent charity evaluator! (learn more).
Number 6: The NF Clinic Network now has 44 recognized centers throughout the country and saw 10,000 patients last year (learn more).
Number 5: NASCAR star Kenny Wallace drove the Racing4Research #4 car at the 2011 Rolex 24 Hours at Daytona raising funds and awareness for NF! (learn more)
Number 4: The Children’s Tumor Foundation has tested 50 drugs for the manifestations of NF, each one moving us closer to treatments and a cure (learn more).
Number 3: In 2010 more than 1,500 Runners in NF Endurance Singlets crossed finish lines in 50 races nationwide for the NF Endurance Team (learn more).
Number 2: There are three forms of neurofibromatosis, NF1, NF2, and schwannomatosis, each cause tumors to grow on nerve endings in or on the body (learn more).
And the Number 1 thing to be Aware of on NF Awareness Day… NF is real. People who live with NF overcome incredible obstacles and you can do something about it  Visit www.ctf.org and join our cause.
So, for today, when you get dressed, WEAR BLUE! Wear blue for my son. Wear blue for Kyle, Travis, AJ, Liam, Brian, and so so many others!